by emmarney | Aug 16, 2021 | Emily's Story
Do I need another MRI Scan? I finally made it to the neurologist. It took a little bit because with three daughters in school life just happened. At my appointment, the neurologist did an evaluation asking about pain and pressure in my head. We went through all the...
by emmarney | Aug 6, 2021 | Emily's Story
The thing about a rare disease, at least for me, is everything that seems simple changes and easily turns complicated. Recently I had a simple routine eye doctor appointment for my oldest daughter and me. Everything started pretty standardly. The doctor saw my...
by emmarney | Jul 27, 2021 | Emily's Story
Have you ever had this happen to you? You are at church or an event listening to a sermon or a speaker. As the speaker talks, you feel like they are staring right at you and speaking directly into your life. What about while reading a book? You are reading a book, and...
by emmarney | May 15, 2021 | Emily's Story
The result of the MRIs and the fire it started. Post 4 MRIs, bloodwork, and an unexpected ultrasound, I have my results. Bloodwork The first step was to get bloodwork. Do you have easy veins to find? Is it because I am overweight? It may be the way my body was...
by emmarney | Apr 12, 2021 | Emily's Story
The beginning of my story starts here Today I met with my new endocrine doctor at Banner for the first time. She covered many things I had learned from my sisters, my genetic counselor, and the Pheo Para Alliance. We talked about some of the medications and...
by emmarney | Mar 29, 2021 | Emily's Story
My story starts just a little bit differently because it starts after my sisters’ stories. So, make sure you go read Jenn and April’s story first to get more details. Then bear with me as I take you through my history, which at first I thought was no big deal. Plus,...
