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PheoPara Awareness Week – 2022

We’re so excited to help spread awareness about Paraganglioma this week! My sisters and I are all PHEO PARA PHEARLESS and have our different superpowers that get us through the fight against paraganglioma. I’m Jenn, and I was recently diagnosed with...

When It Feels Neverending

Today, I had ANOTHER appointment. Luckily it was virtual, and my cat decided to perch herself right in view of the webcam, making it more interesting. I met with my Nurse Practitioner, who works with Genetics. Not many updates on her side. It was more or less an...

Brokenness & Peace

Last Sunday, my pastor delivered a message that was very powerful for me. I currently watch LIVE online most Sundays, so I was sitting there frozen staring at the screen, almost zombie-like in a trance, lingering on every word.  The Broken Mirror The pastor proceeded...