We’re so excited to help spread awareness about Paraganglioma this week!
My sisters and I are all PHEO PARA PHEARLESS and have our different superpowers that get us through the fight against paraganglioma.
I’m Jenn, and I was recently diagnosed with Metastatic Paraganglioma Stage IV Cancer after first having paraganglioma 16 years ago! I didn’t know it was able to spread below my neck until 2020 when I got genetic testing done.
I battle fiercely alongside my Mayo Clinic doctors here in Arizona. This past year I was also diagnosed with Papillary Thyroid Cancer, so I know a thing or two about being a strong warrior against cancer!
If you are new to our blog, we hope you will find some hope and encouragement through our stories. We would really like to grow our Joyful Dazzle community so we can help others not feel alone with their diagnosis.
For the past year I have been battling, so I haven’t been able to post my whole story yet, but I will try to add more to the blog soon.
If you ever have questions or want to chat, the best way to reach me is via my Instagram account at @jennsjoy.run (simply DM me, and I’ll reply ASAP)!
Here is my spot in this year’s awareness week video!