The Joyful Dazzle is a community for sharing hope, joy, and strength while battling the mental, emotional, physical, and spiritual challenges of paraganglioma and other rare cancers.
One Rare Disease – 4 Sisters
This blog features four very different perspectives and stories about a rare disease affecting the daily journeys of four sisters.
By joining The Joyful Dazzle you will:
- hear our personal stories and connect with our journeys
- get an insider view of what it’s like to live with a rare disease (and rare cancer)
- connect with others who need prayer and hope
- lend support to those affected by Paraganglioma
Hi, I'm Jenn
I am a designer, wife, runner, entrepreneur, and pet-lover.
I first encountered Paraganglioma at age 19 when a “benign” tumor grew through my eardrum and left me with partial hearing loss in my left ear.
In February 2021 (15 years later), I was diagnosed with Metastatic Paraganglioma Cancer (Stage IV). I am currently in “watch and wait” for 15+ additional tumors in my liver, lymph nodes and bones.
January 2022 I was also diagnosed with Papillary Thyroid Cancer and I am currently receiving treatment for that, so I can hopefully soon say one cancer down, one to go.
Hi, I'm April
I’m a mom of 2 beautiful girls & a wife to my amazing hubby, David.
I’m a Christ-follower, sarcasm queen, avid theatre fan, trivia game guru & crafty girl poser.
I was diagnosed with carotid paragangliomas in 2013 after having several dizzy spells that eventually escalated to blackouts.
Hi, I'm Emily
I am married to my best friend and God has blessed us with 3 amazing girls.
I would consider myself a coffee-holic, home chef, book worm, and dog lover who is self-employed.
Paraganglioma showed up in my life as a reaction to my sisters having it. I went to the doctor preventatively and found a carotid artery tumor in 2016.
Hi, I'm Katie
Music curriculum specialist by day and crazy cat lady by night.
There is only one thing that I love more than music and cats, Jesus. Ok, friends and family join the tie for second place.
I tested positive for the genetic mutation, SDHD in April of 2021. My sisters have been on this path for several years, but mine is just beginning. Only time will tell what God has planned for me next.
Get inspired by 4 sisters sharing their journeys living with
a Rare Disease called Paraganglioma
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